膀胱外翻 - 波士顿儿童医院

膀胱外翻 - 波士顿儿童医院
Interactive Discussion on Exstrophy of the Bladder - Boston Children's Hospital

Boston Children's Hospital's Center for Bladder Exstrophy Care & Support team will host a live interactive discussion on exstrophy of the bladder, a complex combination of disorders that occurs during fetal development. Diagnosis, surgical treatment, and lifelong management will be discussed in addition to excerpts of a complete repair procedure, taped earlier this year. Also, a family from the support group will share their perspective on having a child with exstrophy of the bladder. This 60-minute Webcast is part of Boston Children's ongoing effort to bring advanced care and technology to specialists and referring physicians around the world, and to educate patients and families about the latest and most innovative medical treatments available.

Bladder exstrophy is a rare, complex congenital anomaly that involves the urinary, reproductive and intestinal tracts, as well as the musculoskeletal system. Approximately 400 new cases of bladder exstrophy are diagnosed each year in the United States, and males are affected 1.5 to 2.3 times more often than females. With bladder exstrophy, the abdominal wall and underlying structures do not properly fuse in utero, when the baby is developing, and the infant is born with the bladder exposed inside-out on the outside of the body. Because the bladder and other structures are exposed, urine constantly trickles onto the skin causing local irritation. Associated conditions can include a widened pubic bone, abnormally-shaped and weakened abdominal muscles, and a shorter than average urethra and vagina or penis. The disorder may occur in varying degrees from mild to severe. It is most often diagnosed by fetal ultrasound, but can be diagnosed at birth.

Boston Children's Center for Exstrophy is known internationally for its preeminent care of these children, caring for 43 newborns with the diagnosis since 1996. "At Boston Children's, the preferred method of surgical treatment is complete primary repair of exstrophy (CPRE), which allows for earlier normal bladder function, leading to optimal bladder growth and development," says Joseph G. Borer, MD director of Children's Center for Bladder Exstrophy and assistant professor of Surgery (Urology) at Harvard Medical School. "Our expert surgeons and clinical staff are some of the most experienced in the world with bladder exstrophy."

"Children with bladder exstrophy are on a unique journey, and our program strives to truly support them every step of the way," adds Rosemary Grant, RN, nursing coordinator for the department of Urology. "With help from the Center for Families, Children's has pioneered efforts in the support and psychosocial development of patients with bladder exstrophy. The Exstrophy Support Group provides education and interaction among patients and families with teen chats, guest speakers, parent-to-parent networking, and medical play for younger children to offer patients and families the support they need at any stage of life."

The Webcast features discussions on prenatal diagnosis of bladder exstrophy by Carol E. Barnewolt, MD, co-chief of Children's Section of Ultrasound and assistant professor of Radiology at Harvard Medical School, and Bruce F. Cohen, MD, Maternal Fetal Medicine Division Director, Department of OB/GYN at Beth Israel Deaconess Medical Center and Instructor of Obstetrics and Gynecology at Harvard Medical School. Dr. Borer will join Alan B. Retik, MD, urologist-in-chief, surgeon-in-chief and professor of Surgery (Urology) at Harvard Medical School, in leading a discussion on surgical treatment of exstrophy, while reviewing video from a procedure on a 2-day-old child. And Rosemary Grant, RN, will discuss the Exstrophy Support Group.

波士顿儿童医院的中心膀胱外翻的关怀与支持团队将举办现场互动讨论外翻的膀胱，疾病，胎儿发育过程中出现的复杂组合。除了 ​​摘录一个完整的修复过程中，录音今年早些时候将讨论诊断，手术治疗，终身管理。此外，家庭的支持小组将分享他们的观点有一个孩子的膀胱外翻。这60分钟的网络直播是波士顿儿童持续的努力，以带来先进的护理和技术专家和指医生在世界各地，并教育患者和家庭有关的最新和最具创新性的医疗护理提供的一部分。膀胱外翻是一个罕见的，复杂的先天性异常，包括对泌尿，生殖和肠道大片，以及肌肉骨骼系统。膀胱外翻约400个新病例被确诊，每年在美国，影响男性往往比女性的1.5至2.3倍。膀胱外翻，腹壁及相关结构不正确地融合在子宫内，当宝宝正在开发，与膀胱露出里面，在外面的身体和婴儿出生。由于膀胱和其他结构暴露，尿液不断地一点点地在皮肤上，造成局部刺激。相关的条件可以包括一个扩大的耻骨，异常的形状和腹部肌肉的减少，和一个比的平均尿道口和阴道或阴茎短。这种疾病可能发生在不同程度从轻微到严重。这是最常见的诊断胎儿超声检查，而且可以在出生时被诊断是国际知名的波士顿儿童中心外翻其卓越的照顾这些孩子，照顾自1996年以来的43新生儿的诊断。“在波士顿儿童，的首选方法，手术治疗是完整的初级维修的外翻（CPRE），这使早期正常膀胱功能，导致最佳膀胱增长和发展，”说，约瑟夫·G.三化螟，MD导演的儿童中心为膀胱外翻和哈佛医学院的助理教授，外科（泌尿外科）。“我们的外科专家和临床人员在世界上最有经验的膀胱外翻。” “ 儿童膀胱外翻是一种独特的旅程，并补充说：”我们的努力真正支持他们的每一个步骤的方式，迷迭香格兰特，RN，护理协调员泌尿外科。“为家庭中心的帮助，儿童已率先努力的支持和社会心理发展与膀胱外翻患者。的外翻支持集团为患者和家庭与青少年聊天，嘉宾讲者，父-到-家长网络之间提供了教育和互动发挥年幼的孩子，和医疗提供病人及家属的支持，他们需要在生活的任何阶段。“ 卡罗尔E. Barnewolt，MD，联席首席超声儿童组和网络直播讨论产前诊断膀胱外翻哈佛医学院助理教授，放射科，和Bruce F. Cohen表示，母胎医学科主任，部OB / GYN在贝斯以色列女执事医疗中心和哈佛医学院的妇产科讲师。博士将加入三化螟艾伦·B. Retik，医师，泌尿科医师，首席，首席外科医生和教授在哈佛医学院外科学（泌尿外科），在领导讨论外翻的手术治疗，而从审查视频在为期2天的岁的孩子的过程。和迷迭香资助，RN，将讨论外翻支援小组。



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怎么打不开呀

膀胱外翻很少见啊

fengyu705729 发表于 2013-3-24 21:08

                               
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怎么打不开呀

那是因为你没有支付香叶

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